The World Economic Forum's (WEF's) precision medicine team's Breaking Barriers to Health Data pilot project has produced a proof of concept that outlines how countries can share rare-disease data safely and anonymously across borders using pre-existing datasets of coded and de-identified patient information, as well as access other datasets across country borders with similar data types. The Breaking Barriers to Health Data project was designed to ensure that people living with rare and other complex diseases were not missing out on life-saving diagnoses and treatments. By following the findings in this guide, the WEF hopes to encourage a cohesive, symbiotic relationship between health institutions throughout the world that may otherwise have different models of consent, operations security and technology.
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